Presentation Information

Exploring the Needs of Childbearing Women with Hypermobile Ehlers-Danlos Syndrome (hEDS)

• Speaker: Sally Pezaro , RM, BA(Hons), MSc, PhD
• Presentation Type:
• Duration: 60 Mins
• Credits: 1 CERP, 1 ACM CPD, 1 ACNM CEU, 0.1 Midwifery CEU

Abstract:

The Ehlers-Danlos Syndromes (EDS) are inherited multi-systemic conditions affecting all connective tissues. Those affected perceive a lack of understanding. Hypermobile EDS (hEDS) is the most common subtype, with significant implications for childbearing women, for whom it is more common. This seminar will present and discuss evidence-based maternity care considerations for this unique subgroup of childbearing women, derived from a recent review of the evidence and an international qualitative study. Greater understandings could translate into practical improvements within maternity care, and a reduction in physical trauma and psychological distress for those with hEDS. Participants are invited to actively engage in critical thinking, practical solutions planning and translating this research into real and positive improvements for maternity services.